On April 1, 2015 Sevanah was diagnosed with a fatal, inoperable brainstem tumour called D.I.P.G. (Diffuse Intrinsic Pontine Glioma). Sevanah and her Dad began writing new monkey stories together shortly after her diagnosis. The Monkey Crew became an outlet for Sevanah to express her frustrations, fears and sadness about the D.I.P.G. symptoms she was experiencing. Piper often explained medical things to Sevanah, and even had her own Banana IV when Sevanah received her turmeric IVs. It was important to our family that Sevanah continued to be a child and not carry the burden of all the details surrounding a D.I.P.G. diagnosis. We made sure to have as much joy, laughter and fun as we could during our battle. After a brave graceful fight, Sevanah passed away in her parent’s arms September 4, 2015. The Monkey Crew has now come to represent so much more than just playtime to our family. The Monkey Crew represents strength, resiliency, joy and hope—Hope that one day, in the near future, we will have a cure for D.I.P.G. so that all ‘little monkeys’ get to grow up.
Join the mischievous Monkey Crew as they swing through wild adventures and exciting expeditions! Monkey Crew Tales is a fun reading adventure playground for children of all ages! Don’t miss all the monkeyshines and mischief as the Monkey Crew sets out on their latest misadventure!
Monkey Crew Tales now available on-line!
www.monkeycrewtales.com
         Monkey Crew Against D.I.P.G.   Childhood Brainstem Cancer Awareness                     
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The Monkey Crew

Sevanah Kathleen Burke Simmons Sevanah Kathleen was an active, normal six-year-old girl who loved singing, dancing her highland steps, creating artistic masterpieces, and writing and drawing her beloved monkey stories. She was a creative, imaginative little girl with an extensive monkey stuffy collection. Each monkey had its own personality and distinct voice which, somehow, Sevanah always remembered. The first monkey in Sevanah’s Crew was Piper. Piper and Sevanah were inseparable.  Piper was the Monkey Crew ring leader and has instigated many of the Monkey Crew’s misadventures. Sevanah spent hours conjuring up elaborate monkey tales which she had hoped to one day turn into Monkey Crew Adventure Books.  
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Monkey Crew Tales now available on- line! www.monkeycrewtales.com

The Monkey Crew

Sevanah Kathleen Burke Simmons Sevanah Kathleen was an active, normal six- year-old girl who loved singing, dancing her highland steps, creating artistic masterpieces, and writing and drawing her beloved monkey stories. She was a creative, imaginative little girl with an extensive monkey stuffy collection. Each monkey had its own personality and distinct voice which, somehow, Sevanah always remembered. The first monkey in Sevanah’s Crew was Piper. Piper and Sevanah were inseparable.  Piper was the Monkey Crew ring leader and has instigated many of the Monkey Crew’s misadventures. Sevanah spent hours conjuring up elaborate monkey tales which she had hoped to one day turn into Monkey Crew Adventure Books. On April 1, 2015 Sevanah was diagnosed with a fatal, inoperable brainstem tumour called D.I.P.G. (Diffuse Intrinsic Pontine Glioma). Sevanah and her Dad began writing new monkey stories together shortly after her diagnosis. The Monkey Crew became an outlet for Sevanah to express her frustrations, fears and sadness about the D.I.P.G. symptoms she was experiencing. Piper often explained medical things to Sevanah, and even had her own Banana IV when Sevanah received her turmeric IVs. It was important to our family that Sevanah continued to be a child and not carry the burden of all the details surrounding a D.I.P.G. diagnosis. We made sure to have as much joy, laughter and fun as we could during our battle. After a brave graceful fight, Sevanah passed away in her parent’s arms September 4, 2015. The Monkey Crew has now come to represent so much more than just playtime to our family. The Monkey Crew represents strength, resiliency, joy and hope—Hope that one day, in the near future, we will have a cure for D.I.P.G. so that all ‘little monkeys’ get to grow up.
Monkey Crew Tales  now available on-line! Join the mischievous Monkey Crew as they swing through wild adventures and exciting expeditions! Monkey Crew Tales is a fun reading adventure playground for children of all ages! Don’t miss all the monkeyshines and mischief as the Monkey Crew sets out on their latest misadventure! www.monkeycrewtales.com
Monkey Crew Against D.I.P.G. Childhood Brainstem Cancer Awareness
               © All rights reserved Monkey Crew Against D.I.P.G. 2016